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SPINA BIFIDA ASSOCIATION
  OF CONNECTICUT

                                
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          About the SBAC

 

In September of 1991, a group of caring and dedicated parents, and adults with spina bifida, were brought together with this mission: To educate the public about spina bifida and issues affecting people who have this very common disability. To provide support and information and to promote programs that will help people with spina bifida. The motivation and determination of these individuals resulted in the rebirth of the Spina Bifida Association of Connecticut, Inc.

Since its inception, the SBAC has worked hard to support parents, adults with spina bifida, and families who have children with spina bifida. The SBAC offers its members the following services and programs: MEETINGS AND ACTIVITIES - which are scheduled during the year, to give people a chance to form friendships and exchange ideas. Speakers are also scheduled during some of these meetings to educate members about issues affecting children and adults with spina bifida. Popular social activities that have been held include a yearly holiday party, summer picnic and a pool party. A chapter NEWSLETTER is published Bi-monthly and distributed to all members, the two spina bifida clinics in Connecticut, and anyone who wishes to receive it. Articles contain information on medical, educational, and social issues affecting people with spina bifida. Members also receive Insights - the national newsletter of the Spina Bifida Association. The SBAC has setup an ALLOCATIONS FUND, which provides up to $500 per year per family for un-reimbursed medical expenses. SCHOLARSHIPS AND CAMPERSHIPS are also available to individual members with spina bifida.

The SBAC feels a great responsibility to help educate the public about the use of FOLIC ACID, a B vitamin, to help reduce the risk of having a pregnancy affected by a neural tube defect, such as spina bifida. We recommend that all women of child bearing age who are capable of becoming pregnant take a daily vitamin supplement containing 400mcg of folic acid in addition to a healthy diet of foods containing folic acid.

We also wish to educate the public about what spina bifida is and how affected individuals can and do reach their full potential as active, productive members of their community.

          The SBAC is a 501(c)3 not-for -profit corporation.
          All donations are tax deductible to the fullest extent allowed by law.

 

Spina Bifida Association of Connecticut, Inc .~ P.O. Box 2545 ~ Hartford, CT ~ 06146-2545

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