If you are
reading
this page,
your life,
in some
way, is
being
affected by
Spina
Bifida.
This is a
shock to
all that
have heard
those words
and we
understand
that
feeling.
The Spina
Bifida
Association
of
Connecticut
( SBAC ) is
made up of
individuals
and
families
that are
affected by
Spina
Bifida in
some way.
The
Association
has many
things to
offer you
in learning
to cope
with the
medical,
educational
and social
aspects
that Spina
Bifida
affects and
make the
most of
every day
life.
If you
are
expecting a
child with,
or have
just had a
child with
spina
bifida, the
questions
you might
be asking
are "What
is it?" and
"How will
it affect
my child ?"
The SBAC is
glad to
help with
in this
learning
process by
providing
educational
brochures
that can
explain
some of the
many
aspects of
spina
bifida.
While we
can not
tell
exactly how
your child
will be
affected,
the
information
from this
material
will make
it easier
to
understand
the
information
that your
medical
providers
give you
about your
child's
health and
abilities.
Aside
from the
medical
components
of spina
bifida,
there are
many social
aspects
that the
SBAC can
assist you
with. These
can go from
dealing
with the
school
system to
socializing
with others
affected by
spina
bifida. The
SBAC
conducts
activities
throughout
the year
that allow
families
and
individuals
of all ages
to talk and
socialize.
This time
together
allows the
children to
socialize
and make
friends
with others
like them,
the adults
with Spina
bifida to
socialize
with other
adults with
spina
bifida and
the
families
and adults
to learn
how others
have dealt
with life
challenges.
Past
activities
have
included
picnics,
holiday
parties,
weekend
camping and
more. We
are always
open to new
ideas and
activities.
Most of
all, the
SBAC offers
a wealth of
experience
from those
who have
dealt and
are dealing
with spina
bifida -
just as you
are now.
We hope
you find
the
information
on this web
site
helpful. If
you have
any
questions
or would
like to
talk with
someone,
please do
not
hesitate to
contact us.
We are here
to help you
and your
family.
